Latest News

2024 RAIRDA Survey

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Help us develop a new information resource on lupus and the menopause

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New fatigue management trial recruiting now: The FLIP Study

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Updates to guidelines on managing lupus

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Newer biological treatments do not have a greater infection risk than traditional immunosuppressants

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New study on the day-to-day experiences and challenges of living with SLE – recruiting now

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Edinburgh Lupus Information Day – 11th May 2024

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Examining the evidence for whether a neuropsychiatric symptom is directly caused by lupus

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Help us update our “Lupus: A Guide to Pregnancy” booklet

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Views on study design for lupus nephritis research

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Welcoming Chelsea & Nakita to the LUPUS UK staff team

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LUPUS UK is delighted to announce their new CEO will be Caroline Olshewsky

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Update on the availability of Bristol Labs hydroxychloroquine (Quinoric)

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Lupus and COVID-19 Vaccination – UPDATE

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Obinutuzumab not recommended for funding by NHS England

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The evidence doctors use to diagnose neuropsychiatric symptoms in lupus – newest results from the INSPIRE study

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Updates to the EULAR guidelines on managing lupus

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Paul Howard stepping down as Chief Executive of LUPUS UK

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Changes to the way you access free lateral flow tests for covid-19

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Voclosporin recommended to treat lupus nephritis in England, Wales, & Scotland

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Diagnostic journeys: New research study recruiting now

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Antibody levels following covid-19 vaccination: first results from the MELODY study

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Immunocompromised people aged 50+ are now eligible for the shingles vaccine

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Share your experiences of clinical trials & help us develop new resources

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Neuropsychiatric symptoms in systemic autoimmune rheumatic diseases

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Investigating gut health in Systemic Lupus Erythematosus

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Accessing COVID-19 treatments

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Meet the new LUPUS UK Trustees

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Research study investigating genetic susceptibility to retinal toxicity in patients taking hydroxychloroquine

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Increasing the number of specialist rheumatology staff benefits patients while saving the NHS money

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World Lupus Day 2023 Press Release

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Update on availability of Zentiva hydroxychloroquine

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COVID-19 treatments available for those at highest risk – UPDATE

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NICE appraisal of COVID-19 treatments – UPDATE

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An indicator in the blood could guide lupus treatment

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The BSR has published two new guidelines to support prescribing during pregnancy for patients with rheumatic conditions

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In Loving Memory of Yvonne Norton

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Availability of Blackrock hydroxychloroquine tablets

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Understanding COVID-19 vaccine responses in lupus patients

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Welcoming Judith & Debbie to the LUPUS UK staff team

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NICE appraisal of Evusheld for preventing COVID-19 – UPDATE

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Joint Pain Wellbeing Programme by Nuffield Health

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SMC approve belimumab (Benlysta) for use by NHS Scotland

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RAIRDA launch Policy Paper

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Volunteering Update: Alida Horne, LUPUS UK Volunteer Co-ordinator

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Mini Information Day & Wellness Event on Saturday 8th October

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New campaign launches for the forgotten 500,000 families

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CAR T-Cell Therapy Shows Promise for Treating Lupus

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Food Standards Agency warns vulnerable consumers about ready to eat smoked fish causing Listeria

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SunSense SPF50+ Product Range Discontinued

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Evusheld – pre-exposure COVID-19 treatment for people at higher risk

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Updated guidance about methotrexate and COVID-19 vaccination

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Volunteering Update

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Volunteering Spotlight: John Webb, Chair of the Cambridge Lupus Group

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Introducing LUPUS UK’s new Trustees

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World Lupus Day 2022 Press Release

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Researchers find a genetic cause of lupus

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LUPUS UK British Paediatric Surveillance Unit JSLE study – Lay Summary

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OCTAVE Study at Great Ormond Street Hospital

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Drug Safety Update – Hydroxychloroquine & Chloroquine

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Help us take action against ending free COVID-19 testing kits

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UK Plan for “Living with COVID-19” – Our Response

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New Support Group in Harrogate

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Our 5 tests for the Government’s plan for living with COVID-19

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Enfield Regional Support Group Update

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Distance Aware Inititiative

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Introducing the new Chair of LUPUS UK, Elaine Holland

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PANORAMIC Study – UK trial of COVID-19 antiviral treatments

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Belimumab (Benlysta) has been approved for the treatment of SLE by NICE

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2021 Grand Draw Winners

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New data reveals impact of COVID-19 on people with lupus

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LUPUS UK wins £1,000 Movement for Good award!

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Introducing the newly appointed LUPUS UK Trustees

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LUPUS UK joins call for employers to support people who may have less protection from vaccines

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BSR Launch UK-wide Accreditation Service, the Quality Review Service

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World Lupus Day 2021 Press Release

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LUPUS UK joins campaign to support uptake of COVID-19 vaccine

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New biomarker to identify increased cardiovascular disease risk

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People with lupus are at risk because of the COVID-19 pandemic

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Influenza (flu) vaccinations in lupus

Answers to all the questions you might have about lupus and the influenza (flu) vaccine.

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How lupus patients would like to be treated: study identifies physician behaviours that help build trust and medical security

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300mg Hydroxychloroquine Tablets – Now Available in UK

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Hydroxychloroquine & COVID-19: An Update

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RAIRDA Report – The Impact of COVID-19 on people with rare autoimmune rheumatic diseases

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Introducing Wendy Diment – Newly Elected Trustee of LUPUS UK

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My experience of COVID-19 by Mel

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Support for people affected by COVID-19

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Lupus & Coronavirus (COVID-19)

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A Preview of the First UK Manga Raising Awareness of Lupus in aid of LUPUS UK

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Anifrolumab: A breakthrough potential new treatment for lupus

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The Medical Research Foundation award £1M for Lupus Research

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Lupus Medication Availability in a “No-Deal” Brexit

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Recommendations for the Management of Systemic Lupus Erythematosus

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Singer-songwriter Cat Burns Talks Lupus

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Lupus experts answer some frequently asked questions

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Exeter Lupus Info Day Videos – Now Online

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‘Diet and Lupus: What do Patients Think?’ Research Paper Summary

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GSK Publishes ‘A Vision for Lupus’ Report

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World Lupus Day 2019 Press Release

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LUPUS UK Funded Researcher – Prof. Christian Hedrich

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