Have your voice heard and influence government policy by participating in a research project, based at the University of Hull, which is exploring the employment experiences of people living with lupus.
This is a good time to influence government policy and attitudes to people with lupus and other autoimmune diseases. A Green Paper on employment and disability was published at the end of 2016 and whilst it set out some good ideas about how to make life better for people with illnesses like lupus, these may not feature in subsequent legislation if we do not make it clear how lupus affects one’s ability to work.
In particular, it is clear that fluctuation, fatigue and invisibility are not recognised by ‘government systems’ – and we think now is the time to put these things on record.
Our questionnaire will take about 15-30 minutes to complete. Your responses will be completely anonymous and no identifying information will be used in anything written up as part of the project. The survey will be open until 5th December 2017.
We will keep keep you up to date with developments on our website.
Please encourage your friends and people in your local group to participate if you can.
Thank you for your support,
Dr Sara Booth, Professor Liz Walker and Dr Liz Price