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NICE publishes Quality Standard for rare disease NICE has published a Quality Standard for Rare Disease which sets out what high-quality sustainable care, treatment, and management should look like for rare diseases. We hope that this will help improve services, care,...

NICE have recommended that a new treatment, obinutuzumab, can be used in combination with mycophenolate mofetil (MMF) to treat some patients with lupus nephritis in the NHS in England and Wales.  Lupus nephritis is a type of kidney disease caused by lupus, which is an...

Stay Protected This Winter: Flu, COVID-19, and RSV Vaccines  During the colder months, viruses like flu, COVID-19, and respiratory syncytial virus (RSV) circulate more widely. For people with lupus, especially those taking immunosuppressive medicines, these infections...

Explores the Lupus UK Research Network, the benefits of getting involved and answers common questions  Published: November 2025. Reading time:10 mins Research into lupus has made great progress, helping us understand more than ever before. But there’s more to do – the...

From 1st September 2025, more people will be able to get the Shingrix shingles vaccine on the NHS. This includes anyone aged 18 or older (with no upper age limit) who has a weakened immune system. Until now, it was only given to people with weakened immune systems...

Understanding CAR-T Therapy for Lupus: New Video Series The animated videos were funded by Autolus Ltd. Autolus had no input into the content of the video, and Lupus UK held full editorial control and remain independent of Autolus. Autolus did not fund and had no...

We are thrilled to welcome Khiry Rowe-Hopkins to the Lupus UK family as our newest Ambassador! Khiry is a lupus advocate who is passionate about raising awareness and supporting the lupus community. Khiry has shown a huge commitment to the charity as a Volunteer for...

A new report has been published evaluating lupus care in Wales, using information from people living with lupus and healthcare professionals. The report found some strengths of how care for lupus is delivered, and some areas which could be improved. The findings and...

The NHS Spring 2025 COVID-19 booster vaccination scheme is starting across England, Scotland, Wales and Northern Ireland.  NHS staff has begun administering the first doses of the spring Covid-19 vaccine. NHS officials are urging those most at risk to secure their...