Latest News

New fatigue management trial recruiting now: The FLIP Study

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Updates to guidelines on managing lupus

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Newer biological treatments do not have a greater infection risk than traditional immunosuppressants

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New study on the day-to-day experiences and challenges of living with SLE – recruiting now

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Edinburgh Lupus Information Day – 11th May 2024

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Examining the evidence for whether a neuropsychiatric symptom is directly caused by lupus

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Help us update our “Lupus: A Guide to Pregnancy” booklet

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Views on study design for lupus nephritis research

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Cold Feet, Warm Heart by Maryann

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Welcoming Chelsea & Nakita to the LUPUS UK staff team

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LUPUS UK is delighted to announce their new CEO will be Caroline Olshewsky

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Update on the availability of Bristol Labs hydroxychloroquine (Quinoric)

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Lupus and COVID-19 Vaccination – UPDATE

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Obinutuzumab not recommended for funding by NHS England

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The evidence doctors use to diagnose neuropsychiatric symptoms in lupus – newest results from the INSPIRE study

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Updates to the EULAR guidelines on managing lupus

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Fundraising photo-diary by Eric Chee

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Paul Howard stepping down as Chief Executive of LUPUS UK

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Changes to the way you access free lateral flow tests for covid-19

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A Day in The Life of a Qualified Occupational Therapist living with Lupus and Type 1 Diabetes by Melissa

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“But you don’t look sick” – the extra battle of Blackness by Maryann

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Voclosporin recommended to treat lupus nephritis in England, Wales, & Scotland

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Diagnostic journeys: New research study recruiting now

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Antibody levels following covid-19 vaccination: first results from the MELODY study

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Immunocompromised people aged 50+ are now eligible for the shingles vaccine

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Share your experiences of clinical trials & help us develop new resources

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What about your friends? by Maryann

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Neuropsychiatric symptoms in systemic autoimmune rheumatic diseases

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Investigating gut health in Systemic Lupus Erythematosus

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Travelling with lupus: tips and tricks by Vanisha Patel

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Accessing COVID-19 treatments

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Meet the new LUPUS UK Trustees

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Research study investigating genetic susceptibility to retinal toxicity in patients taking hydroxychloroquine

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A day in the life of men with lupus

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Increasing the number of specialist rheumatology staff benefits patients while saving the NHS money

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Why I Volunteer with LUPUS UK

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The Three M’s: Medication, Movement & Mindfulness by Louise

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The concept of conceiving with lupus by Maryann

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Road to the Invictus Games 2023 – My lupus journey by Claudine Martin

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World Lupus Day 2023 Press Release

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Update on availability of Zentiva hydroxychloroquine

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Patient Experiences – World Lupus Day 2023

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COVID-19 treatments available for those at highest risk – UPDATE

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NICE appraisal of COVID-19 treatments – UPDATE

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My Five-year Journey as a Specialist Lupus Nurse with LUPUS UK by Hannah Guest

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Lupus and Ramadan

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An indicator in the blood could guide lupus treatment

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The BSR has published two new guidelines to support prescribing during pregnancy for patients with rheumatic conditions

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Minor Setbacks, Major Comebacks … by Khiry Hopkins-Jones

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In Loving Memory of Yvonne Norton

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Availability of Blackrock hydroxychloroquine tablets

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Understanding COVID-19 vaccine responses in lupus patients

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Welcoming Judith & Debbie to the LUPUS UK staff team

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NICE appraisal of Evusheld for preventing COVID-19 – UPDATE

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Navigating Through Life with Raynaud’s Phenomenon by Munreet 

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Single and Ready to Mingle? The warrior’s worries! By Maryann

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Joint Pain Wellbeing Programme by Nuffield Health

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The Sick Girl Trope by Katie Hogben

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SMC approve belimumab (Benlysta) for use by NHS Scotland

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RAIRDA launch Policy Paper

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Taboos around lupus in the South Asian community By Vanisha Patel

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Volunteering Update: Alida Horne, LUPUS UK Volunteer Co-ordinator

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Mini Information Day & Wellness Event on Saturday 8th October

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New campaign launches for the forgotten 500,000 families

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Another journey around the Sun by Maryann

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CAR T-Cell Therapy Shows Promise for Treating Lupus

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Food Standards Agency warns vulnerable consumers about ready to eat smoked fish causing Listeria

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SunSense SPF50+ Product Range Discontinued

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Evusheld – pre-exposure COVID-19 treatment for people at higher risk

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Updated guidance about methotrexate and COVID-19 vaccination

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Volunteering Update

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Volunteering Spotlight: John Webb, Chair of the Cambridge Lupus Group

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Everybody loves the Sunshine by Maryann

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Introducing LUPUS UK’s new Trustees

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Working Girl by Maryann

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World Lupus Day 2022 Press Release

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Researchers find a genetic cause of lupus

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LUPUS UK British Paediatric Surveillance Unit JSLE study – Lay Summary

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OCTAVE Study at Great Ormond Street Hospital

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Drug Safety Update – Hydroxychloroquine & Chloroquine

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Help us take action against ending free COVID-19 testing kits

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UK Plan for “Living with COVID-19” – Our Response

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New Support Group in Harrogate

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Our 5 tests for the Government’s plan for living with COVID-19

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COVID versus lupus, by Maryann

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Enfield Regional Support Group Update

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Distance Aware Inititiative

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Introducing the new Chair of LUPUS UK, Elaine Holland

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PANORAMIC Study – UK trial of COVID-19 antiviral treatments

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Discoid lupus erythematosus (DLE) and me, by Maryann

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Belimumab (Benlysta) has been approved for the treatment of SLE by NICE

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Prof David Isenberg on Live Longer: The Podcast

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Our lupus experiences during the COVID-19 pandemic

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2021 Grand Draw Winners

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New data reveals impact of COVID-19 on people with lupus

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LUPUS UK wins £1,000 Movement for Good award!

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Introducing the newly appointed LUPUS UK Trustees

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LUPUS UK joins call for employers to support people who may have less protection from vaccines

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Benefits and risks of skin disease treatments in people with lupus

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BSR Launch UK-wide Accreditation Service, the Quality Review Service

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World Lupus Day 2021 Press Release

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LUPUS UK joins campaign to support uptake of COVID-19 vaccine

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New biomarker to identify increased cardiovascular disease risk

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People with lupus are at risk because of the COVID-19 pandemic

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A Lupus Awareness Month update from our CEO

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Influenza (flu) vaccinations in lupus

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How lupus patients would like to be treated: study identifies physician behaviours that help build trust and medical security

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300mg Hydroxychloroquine Tablets – Now Available in UK

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Hydroxychloroquine & COVID-19: An Update

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RAIRDA Report – The Impact of COVID-19 on people with rare autoimmune rheumatic diseases

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Looking after your well-being during isolation

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Introducing Wendy Diment – Newly Elected Trustee of LUPUS UK

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LUPUS UK 29th Annual General Meeting – CEO’s Report

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My Diagnosis by Mary Tidbury

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My experience of COVID-19 by Mel

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Support for people affected by COVID-19

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Hand Skin Care

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Lupus & Coronavirus (COVID-19)

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A Preview of the First UK Manga Raising Awareness of Lupus in aid of LUPUS UK

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Anifrolumab: A breakthrough potential new treatment for lupus

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The Lupus Clinic by Thea Southwell Reeves

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Lupus and Self-confidence by Beth Smith

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The Medical Research Foundation award £1M for Lupus Research

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University and Lupus by Elisabeth McInnes

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Lupus Medication Availability in a “No-Deal” Brexit

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Recommendations for the Management of Systemic Lupus Erythematosus

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Singer-songwriter Cat Burns Talks Lupus

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Lupus experts answer some frequently asked questions

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Education and Life with Lupus – Amy Baker

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Exeter Lupus Info Day Videos – Now Online

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‘Diet and Lupus: What do Patients Think?’ Research Paper Summary

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GSK Publishes ‘A Vision for Lupus’ Report

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World Lupus Day 2019 Press Release

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LUPUS UK Funded Researcher – Prof. Christian Hedrich

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Barriers to Maintaining Employment with SLE

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West Midlands Lupus Information Day Videos – Now Online

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LUPUS UK Funded Researcher – Dr Chris Wincup

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July’s Topic of the Month – Caring for your Feet

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Addenbrooke’s Hospital awarded LUPUS UK Centre of Excellence

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June’s Topic of the Month – Starting a New Treatment

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April & May’s Topic of the Month – Coping with Side Effects

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World Lupus Day 2018 Survey Findings

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New survey highlights lack of awareness of lupus

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March’s Topic of the Month – Lupus and Pregnancy

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In Memory of Shelagh Cheesman

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February’s Topic of the Month – Coping with Headaches & Migraines

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People with lupus are waiting more than 6 years for a diagnosis in the UK

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Summary of the LUPUS UK Member Survey Findings

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New report about the experiences of people with rare autoimmune rheumatic diseases

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January’s Topic of the Month – Coping with Dry Eyes and Mouth

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December’s Topic of the Month – Coping with Depression and Anxiety

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November’s Topic of the Month – Lupus and Work

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#THISISLUPUS

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First UK Guidelines for Management of Lupus in Adults Published

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September’s Topic of the Month – Getting a Diagnosis of Lupus

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Selena Gomez reveals recent kidney transplant

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August’s Topic of the Month – Studying with Lupus

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July’s Topic of the Month – Managing Your Finances

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June’s Topic of the Month – Involving technology in your healthcare

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Cost of prescriptions prevent people from getting necessary medication

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May’s Topic of the Month – Taking Care of Your Nails

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Lupus Knows No Boundaries e-Report published by World Lupus Federation

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Belimumab (Benlysta) approved for restricted use in NHS Scotland

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‘Please Offer Me a Seat’ badge launched across TfL network

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April’s Topic of the Month – Coping with Oral and Nasal Ulcers

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March’s Topic of the Month – Pain Management

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New Smartphone App for People with Lupus

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UK Strategy for Rare Diseases Implemented

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February’s Topic of the Month – Lupus & Relationships

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The Work, Health and Disability Green Paper Response

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January’s Topic of the Month – Diet & Healthy Eating

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December’s Topic of the Month – Stress Management and Relaxation

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November’s Topic of the Month – Getting the Most from your Medical Appointments

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October’s Topic of the Month – Coping with Raynaud’s Phenomenon

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September’s Topic of the Month – Skin Camouflage

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Selena Gomez News Coverage Reveals Lack of Awareness for Lupus in the UK

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August’s Topic of the Month – Coping with Itchy Rashes

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July’s Topic of the Month – Preventing and Treating Insect Bites

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June’s Topic of the Month – Coping with Light Sensitivity

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May’s Topic of the Month – Going on Holiday with Lupus

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New Survey Reveals Serious Misconceptions about Lupus in UK Public

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April’s Topic of the Month – Coping with Hair Loss

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March’s Topic of the Month – Exercising with Lupus

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RNHRD awarded LUPUS UK Centre of Excellence

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February’s Topic of the Month – Coping with Brain Fog

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January’s Topic of the Month – Managing Fatigue

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£4.1m project for better lupus treatment

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