Some Patients Say...
"Having lupus is like having your mind in fifth gear and not being able to get your body out of first."
"It's the tiredness. Even if you could sleep all day and night it wouldn't help."
"Because you look well, nobody understands the way you are feeling."
"I was told all my symptoms were in my head. I began to think I was a hypochondriac."
"It takes 2 to 3 years to get to grips with lupus, but your grasp is strengthened by contact with other people who have it"
"Finding people who understand what you're talking about and going through makes all the difference in the world."
Lupus patients can obtain real benefit from liaising with others and discussing shared problems and experiences. The local support group activities listed offer good opportunities in this respect, together with the chance to improve understanding of the illness and to hear medical speakers.
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