Research Study Looking for Participants
A genetic research study which has received funding from LUPUS UK is currently looking for participants.
The Research Coordinator has provided the details below:
Why are SLE patients needed?
The aim of our research is to find the genetic factors that increase the risk of developing SLE. Using your DNA, along with the information that we get from your questionnaire and clinical records, we can look for similarities and differences between people with SLE and people who are unaffected by the disease. We can use this to identify genetic differences that are more prevalent in SLE patients and then ask how these genetic factors affect the immune system and how they also influence the nature and severity of the disease.
Your contribution helps us to continue our important research in search of genes influencing SLE, leading to advances in SLE research and potential future therapies.
Who can help?
If you have been definitely diagnosed with SLE, we would greatly appreciate your contribution. We would also appreciate any help your immediate family can give us, particularly if they are also affected by SLE or other autoimmune conditions (Rheumatoid Arthritis, Ankylosing Spondylitis, Multiple Sclerosis, etc.)
What does participation involve?
Initially you will be asked to complete a short questionnaire about how you have been affected by SLE and to give a blood sample (40ml, or 8 tsp). To do this you can either visit our department at Guy's Hospital or we can send you a blood collection pack that you can take to your GP or local hospital for them to take the sample and then send back to us.
Depending on the results we get from your blood, you may be contacted, if you are willing, in the future regarding other studies that we run. Participation in these extra studies is completely voluntary, but would be greatly appreciated. The requirements of these studies vary, but often require another blood sample.
If you are interested in participating in our study or would like more information, please contact our research co-ordinator Sophie Ragan using the details below.
Phone us: 020 7188 9039
Sophie Ragan, Research Coordinator is working for Prof. Timothy Vyse in the department of Medical & Molecular Genetics in King’s College London. Prof. Vyse has been involved in lupus research for many years.