The most important thing is taking your medication and attending clinic for regular check-ups and blood tests. If you have some of the side effects of prednisolone particularly weight gain, continuing to take your medications can be more difficult. Many young people sometimes lose interest or get fed up following their treatment plan. Remember to discuss your frustrations and worries with your family, your doctor, nurse, or another member of the team who you feel comfortable speaking to.

Knowing about lupus

Knowing as much as possible about lupus will enable you to make sensible and informed decisions. Recognising your own symptoms and knowing small changes may affect your body will help you manage your disease. Being able to follow your own treatment plan can help you feel in charge and also help you to become familiar with how lupus affects your body.

Beware of internet and scare stories you may hear about lupus. Always ask your medical team about how lupus affects YOU. Different lupus patients can be affected by their disease in very different ways. There are some very helpful and informative websites provided at the end of this booklet.