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Extract from the LUPUS UK web site at:

Q & A Overview

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  • LUPUS PRODUCES SURPLUS ANTIBODIES - CAN THEY BE KILLED OFF OR IN SOME WAY SUPPRESSED?
  • That's far from easy - the immune system is very complex and doctors are still trying to fully understand its workings. For the present, any one or more of a range of medications is prescribed to attempt to control the illness and to dampen down its effects.
  • WHAT IS THE RANGE OF MEDICATIONS?
  • Some lupus is so mild that no medication is needed and in other patients everyday anti-inflammatory drugs give control. For others, steroids are prescribed and non-steroidal drugs are also proving effective in controlling the illness, with a few patients needing eg anti-cancer drugs to manage their lupus.
  • CAN PATIENTS 'SELF-MANAGE' THEIR LUPUS?
  • Patients can certainly be positive in obtaining good information on lupus and in learning to 'pace' themselves - rest is very essential.

    Being open with family and friends about the unpredictable pattern of lupus helps, and stress, depression and pain each need to be managed.

    Avoiding direct sunlight always helps.

    Seeking assistance at the right time from doctors or the family takes some resolve but is a 'must'.

    Specific lupus self-management courses are now gradually being introduced and there is increasing evidence that after such courses many patients are not so reliant on their medication and visit their doctors and hospitals rather less.
  • WHAT ABOUT THE LIFE EXPECTANCY OF LUPUS PATIENTS?
  • This is now much improved and most patients can anticipate a normal lifespan. The advent some years ago of steroids has saved the lives of many lupus patients.
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