Useful Links

LUPUS UK Regional Groups

www.cambridgeshirelupus.org.uk :: Cambridgeshire Lupus Group

www.devonandcornwalllupus.org :: Devon and Cornwall Lupus Group

www.dorsetlupus.com :: Dorset Lupus Group

www.eastmidlandslupusuk.co.uk :: East Midlands Lupus Group

www.eastmidlandslupusuk.co.uk :: East Midlands Lupus Group

www.kentlupusgroup.org :: Kent Lupus Group

www.northwestlupus.org.uk :: North West Lupus Group

www.lupussupportgroupni.co.uk :: Northern Ireland Lupus Group

www.southwaleslupusgroup.weebly.com :: South Wales Lupus Group

www.suffolklupusgroup.org :: Suffolk Lupus Group

www.westernlupus.org.uk :: Western Lupus Group

www.westmidlandslupus.co.uk :: West Midlands Lupus Group

Other UK Associations/Organisations

www.aps-support.org.uk :: APS Support UK (for antiphospholipid syndrome/Hughes syndrome)

www.arthritisresearchuk.org :: The charity leading the fight against arthritis

www.arthritiscare.org.uk :: Arthritis Care

www.arthritisnorth.com :: Private Consulting Rooms, Belfast

www.bdng.org.uk :: British Dermatological Nursing Group

www.bssa.uk.net :: British Sjögren's Syndrome Association

www.centre-for-adolescent-rheumatology.org :: UCLH Centre for Adolescent Rheumatology

www.lupus.org.uk :: St Thomas' Lupus Trust

www.londonlupuscentre.co.uk :: London Lupus Centre, London Bridge Hospital

www.nras.org.uk :: National Rheumatoid Arthritis Society (NRAS)

www.thelupussite.com :: A guide for lupus patients and their families

www.sruk.co.uk :: Scleroderma & Raynaud's UK

www.vitiligosupport.org.uk :: Vitiligo Support UK

General Useful Links

www.aceinnovation.co.uk :: Suppliers of SuperVisor® designed specifically for isolated cases of light sensitivity related to office lighting environments

www.anticoagulation.org.uk :: University of Birmingham Anticoagul

www.adviceguide.org.uk/england/benefits_e/benefits_factsheets.htm :: Benefits fact sheets

www.bbc.co.uk/health :: BBC Health pages

www.beautyresource.org.uk/articles/skin-camouflage.html :: Find beauty professional dealing with Skin Camouflage

www.benefitsandwork.co.uk :: Get the benefits you're entitled to

www.britishpainsociety.org :: Providing general information about all aspects of pain

www.c-app.org.uk :: A web resource designed to help people with disabilities or long term physical or mental health conditions to apply for PIP and ESA

www.changingfaces.org.uk :: Support for people with disfigurements of the face and body

www.charitychristmascards.com/charitychoice :: Personalised Charity Christmas Cards

www.coolcrutches.com :: Funky coloured crutches ... not hospital grey!

www.counselling-directory.org.uk :: Connecting you with professional support

www.direct.gov.uk/en/DisabledPeople/index.htm :: Information & advice on all aspects of disability

www.drugwatch.com :: Keeping your medication safe

www.expertpatients.co.uk::Self Management Courses for those with long term health conditions

www.gmc-uk.org/guidance/patients :: What to expect from your doctor: a guide for patients

www.health-friends.org :: Health Social Network

www.healthline.com/health/lupus/effects-on-body :: A body map and accompanying description of symptoms in lupus

www.healthwatch.co.uk :: Healthwatch England is the independent consumer champion for health and social care in England

www.householdquotes.co.uk/uk-benefits :: Listing of elgibility criteria for a number of benefits available in the UK

www.hypnotherapy-directory.org.uk :: Support network of UK hypnotherapists

www.ICEtags.co.uk :: ICEtags carry vital information about you to get the help you need, should you need it

www.lifecoach-directory.org.uk :: Search for a life coach or NLP practitioner near you

www.thelupusnarratives.org :: A research blog dedicated to exploring people's experiences of being diagnosed and living with lupus in the UK

www.malpracticecentre.com :: General information about UK medical malpractice laws

www.medicalert.org.uk :: MedicAlert Foundation

www.medicines.org.uk/emc :: Summaries of Product Characteristics (known as SPCs or SmPCs)
Patient Information Leaflets (known as PILs, Package Leaflets or PLs)

www.medipal.org.uk :: Medical ID Cards

www.mylupusteam.com :: The social network for those living with lupus

www.mytherapyapp.com :: A medication reminder app to help you keep track of your medications and stay on top of your health.

www.nationalvoices.org.uk :: An organisation that brings the voices of patients, service users and carers to bear on national health and social care policy in England

www.nhs.uk/carersdirect :: Information, advice and support for carers

www.nhs.uk/conditions/Lupus/Pages/Introduction.aspx :: NHS Choices Health A-Z

www.nutritionist-resource.org.uk :: Nutrition support network

www.ombudsman.org.uk :: Parliamentary and Health Service Ombudsman

www.painconcern.org.uk :: Registered charity offering information and support for people who live with pain and those who care for and about them

www.painuk.org :: Pain UK - an alliance of charities providing a voice for those in pain

www.patient.info :: Patient - Trusted medical advice

www.patientopinion.org.uk :: Patient Opinion

www.patients-association.com :: Listening to patients. Speaking up for change.

www.pmrgcauk.com :: Polymyalgia Rheumatica and Giant Cell Arteritis UK
Offers support, raises awareness and encourages research into the two illnesses.

www.quitza.com :: Quitza is the world's first quit smoking social network webapp. Helping people quit smoking one cigarette at a time.

www.scope.org.uk :: Providing free, independent and impartial information and support on the issues that matter to disabled people and their families

www.stairliftadvisor.co.uk :: Offers consumers impartial advice about stairlifts.

www.stairliftexperts.co.uk/the-definitive-guide-to-stairlift-grants :: Everything you need to know about applying for a stair lift grant

www.skin-camouflage.net :: British Association of Skin Camouflage

www.sleepcouncil.org.uk :: The Sleep Council (Helping you get a better night's sleep)

www.sunsibility.co.uk :: Sunsibility - UV protective clothing

www.sunwiseuva.co.uk :: Sunwise UVA Clothing

www.riseabove.org.uk :: The Rise Above website aims to build emotional resilience in individuals aged 11 to 16 by equipping them with the skills and knowledge they need to make informed decisions, and help deal with the pressures of growing up.

www.rscpp.co.uk :: a Therapist Directory listing over 2000 Therapists nationwide all of which are accredited/chartered or registered and belong to a professional body.

www.thepillowfort.co.uk :: Online magazine, blog and support group aimed at young people with chronic illnesses.

www.therapy-directory.org.uk :: Search for a professional therapist near you

www.turn2us.org.uk :: Help people access the money available to them – through benefits, grants and other financial help.

www.UmbrellaHeaven.com :: Silver UV Protective Umbrellas

www.webmd.boots.com/a-to-z-guides/ss/slideshow-lupus-overview :: Boots Web MD

www.whatsuccesslookslike.org.uk/guides :: a free resource for jobseekers with conditions, marks or scars that affect their appearance to promote confidence and comfort in interviews, with a view to levelling the playing field.

www.withoutwings.weebly.com :: Without Wings: The Manx charity specifically for people living on the Isle of Man living with Autoimmune Arthritis

Travel Insurance companies

www.able2travel.com :: able2travel Insurance Specialists

www.allcleartravel.co.uk :: AllClear Travel Insurance

www.freedominsure.co.uk :: Freedom Travel Insurance
(LUPUS UK receives a donation from each policy sold by Freedom Travel)

www.free-spirit.com :: Free Spirit Travel Insurance

www.gotravelinsurance.co.uk :: Go Travel Insurance

www.insurancechoice.co.uk :: Insurance Choice
(LUPUS UK receives a donation from each policy sold by Insurance Choice)

www.the-insurance-surgery.co.uk/?ref=tis854 :: The Insurance Surgery
(LUPUS UK receives a donation from each policy sold by The Insurance Surgery)

www.itssoeasytravelinsurance.com :: It's so Easy Travel Insurance

www.justtravelcover.com/index.php?xyzid=77 :: JustTravelcover
(LUPUS UK receives a donation from each policy sold by JustTravelcover)

www.orbisinsurance.co.uk :: Orbis Insurance Services

www.staysure.co.uk :: Staysure - over 50s experts